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A Trauma-Informed Toolkit for Providers in the Field of Intellectual Disabilities

 

Research has shown that people with intellectual/developmental disabilities (IDD) are at significantly more risk of ACEs and other forms of abuse and neglect than is the general population. This toolkit, attached here for free downloading, addresses a number of areas designed to support people with IDD who may have experienced trauma. 

The toolkit begins with a preface by Dan Tomasulo, who has been instrumental and groundbreaking in developing clinical approaches in IDD/Trauma work. This is followed by a preface by Ed Bartz, policy entrepreneur for the initiative that lead to the development of the toolkit, who speaks with wisdom from the perspective of an individual with a disability. 

Chapter 1 offers information and a guide for direct support professionals and others, with many exercises designed to enhance wellness and resiliency. Research has shown that attention to staff wellness is critical, and can positively impact the quality of care, reduce use of restrictive interventions, and reduce turnover. 

Chapter 2 provides background information as to the problem of ACEs and the evidence that the problem is magnified in the field of IDD. 

Chapter 3 provides guidance for trauma informed behavioral planning. functional behavioral analysis for people with a trauma history requires special understanding. Critical elements needed in planning for people with a trauma history are delineated. A sample “trauma-informed” support plan is included to provide guidance in this area, as well as a template for a therapeutic support plan that the reader is free to use. 

Chapter 4 is offers direction for thinking about personal and agency solutions for administrators, quality assurance staff, and interested others. The Restorative Integral Support model proposed by Heather Larkin and John Records (citations in document) provides a foundational approach with theoretical underpinnings. 

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Marti Howard posted:

I concur with others.  Thank you!  It's about time.  I've been working for 8-9 years to help our agency understand trauma and respond differently.  It's been a long haul.  Thank you for these resources!!!

Thanks for the comment Marti, and thanks too for the work in this area- so desperately needed!

I concur with others.  Thank you!  It's about time.  I've been working for 8-9 years to help our agency understand trauma and respond differently.  It's been a long haul.  Thank you for these resources!!!

Kudos to you Steve Marcal for this true labor of love!  It has been a honor to follow your work on this.  Kudos also the the HEARTS MARC Program in Albany NY for supporting Steve through one of their partner "mini-grants" to create this invaluable tool.

Thank you for posting this information.  I have worked in the field of IDD/MH for over 20 years and it has always bothered me that we don't pay enough attention to trauma-related issues - everything has been labeled "behavior" and our plans have been written without taking into consideration that we are working with a thinking, feeling human being who is more than a bundle of behaviors to be modified.  Long overdue!

Sometimes just liking a post just isn't enough!

I'm so very, very, very, VERY glad to see this post -- long neglected area for far too long -- not adequately appreciated by most in the "mental health" field, ACEs combined with ignorance contribute to much of the difficulty experienced by people with these issues in their lives.

Thanks very much for this.

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