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The trouble with trauma (-informed), the aggravation of ACEs (screening): We're trying to fit both into traditional frameworks and it isn't working

 

What do you call it?

The PACEs movement (PACEs = positive and adverse childhood experiences)?

The NEAR movement (NEAR = neurobiology, epigenetics, ACEs and resilience)?

The resilience movement?

The trauma-informed movement?

No matter what you call it, this movement emerged from two mind-bending, culture-changing developments that grew and evolved over the last 25 to 30 years. One is a groundbreaking epidemiological study, the CDC-Kaiser Permanente Adverse Childhood Experiences Study, first published in 1998 and followed by 70 publications that expanded its significance over the subsequent 20 years. The other, the Substance Abuse and Mental Health Services Administration’s (SAMHSA) work to acknowledge and address trauma that began in a series of meetings in 1994 when substance abuse and mental health were considered two separate entities and systems trauma was a concept that those receiving services understood, but most providing services did not.

An appreciation of the significance and impact of both coalesced between 2012 to 2014. SAMHSA, part of the U.S. Department of Health & Human Services, published the Concept of Trauma and Guidance for a Trauma-Informed Approach, which became the bible for trauma-informed approaches and interventions. Separate trajectories in five areas of scientific inquiry coalesced into one: the science of adverse childhood experiences (ACEs science). It comprises the epidemiology of ACEs (the ACE Study and others), which added other ACEs as time went on, including racism, bullying, homelessness, systems trauma, classism and essentially all the social determinants of health; the neurobiology (brain science) of toxic stress; the epigenetics of toxic stress, including historical trauma, generational trauma and systems trauma; and the long- and short-term health consequences of ACEs and toxic stress. The fifth, resilience science, led to the inclusion of positive adverse experiences with a scale that could be scored from 0 to 7, and referring to PACEs science.

Perhaps the trouble began with the SAMHSA paper not mentioning the ACE Study (even though it had several references to its publications). Or not mentioning or providing an accurate definition of ACEs science. Or the misperception in the ACEs community that ACEs science didn’t include resilience and solutions. It seems as if too many people looked at the ACE Study’s 10 original questions and stopped there, ignoring both the expanded understanding of what comprises ACEs and that people in the community were developing stunning solutions:

Schools stop suspending and expelling students. After one year of involvement with Safe Babies Courts, 99 percent of kids suffer no further abuse. A family physician in Tennessee who treats people addicted to opioids sees 99 percent of his patients able to hold down a job, which is the best indicator of healing. Within 24 to 48 hours after a person recovers from an opioid overdose in Plymouth County, MA, a police officer visits and offers to take them to a rehab facility right then and there. And then says, “How about I treat you to dinner on the way?” Opioid deaths in the county dropped 26 percent, while in the surrounding counties, death rates increase 84%. Over the last eight years, a batterer intervention program in Bakersfield, CA, saw recidivism rates fall from 60 percent to below 5 percent. In Cowlitz County, WA, youth suicide and suicide attempts dropped 98 percent. The list goes on…

Generally speaking, instead of intertwining as they should have, the trauma-informed and ACEs science communities followed their noses down different roads. Organizations focused on learning how to become trauma-informed. Most courses offer a quick and easy path. Some say a three-hour workshop is enough! Quite a few don't include all the parts of the science of positive and adverse childhood experiences, although many address, but gloss over, brain science.

Also generally speaking, the ACEs science community dove into ACEs screening. Although most of the activity has taken place in the healthcare community, there’s screening occurring in education, juvenile justice, and social services. In the healthcare community, this led to controversies ranging from people advocating not screening at all to people embracing it wholeheartedly. The different points of view have played out in journals and on PACEs Connection.

Our approach is that PACEs science is the what, the foundation. Trauma-informed is the how…the practices and policies. They’re supposed to be joined at the hip. The knowledge from one informs the other and continues to do so as the implications of each reveal themselves, every step of the way. In other words, the layers in each are many; you don’t just learn it and move on. As you implement, you realize that there’s another aspect you need. You circle back to find there’s another layer, you learn its implications and figure out the next step. So how can we facilitate this process? As it stands now, this separation doesn’t really serve.

The solution is not what you might expect. It’s something that organizations ignore, not only at their own peril, but in their ultimate success in serving their clients, patients, students, inmates, customers, etc.

The solution: Eliminate the “them-us” dilemma we’ve created. One of the most important conclusions that Dr. Robert Anda, co-principle investigator of the ACE Study, came to was this: “There is no more them and us.” He meant that ACEs affect us all. ACEs science is apolitical. Toxic stress from ACEs is a human condition. No matter who you are or where you live on this planet or who you vote for, if you’re put under enough stress, your brain and your body will suffer. Thus, ultimately, organizations, communities, systems, cities, states, and nations will suffer, because they are, after all, created by and made up of humans.

This means that organizations need to address their own ACEs and PCEs first. The best way to start, after educating people about the basics of PACEs science, is to have staff members complete an anonymous PACEs survey together (in person or live webinar) by using instant polling software such as PollEverywhere. The individual PACE scores are compiled in real time so that everyone can see the organization’s collective burden of ACEs and the collective strength of its PCEs instantly. Make sure to include the range of ACEs and PCEs (1-2, 3, 4+) to get a handle on how much the organization needs shoring up.

Why should organizations do this? If people in an organization have a better understanding of themselves, they’ll have a better understanding on how to work with those they serve as well as fellow staff members. They’ll understand their own triggers. They’ll be more responsive and listen more carefully. Trauma-informed practices and policies will come naturally with a scientific foundation and spur creativity in developing solutions. The transition is likely to go smoother. This also prevents what’s beginning to crop up: a fatigue with PACEs and trauma-informed practices, which comes from trying to fit the new science and practices into existing old boxes. What most people don’t grok is that this new science and trauma-informed practices work best in new boxes. And most important, if an organization is  asking its clients, patients, students, inmates, customers, etc., to address their own ACEs and PCEs, the entire organization staff must do so, too.

By implementing the understanding that “There is no more ‘them and us’”, we can move beyond the current traditional approaches of “I’m healthy; you’re not.” and “I have all the power; you have none.” We move to a place of understanding that we all learn from each other.

This approach isn’t easy, but what exercise in self-examination and reorganization is? And it isn’t a one-day journey. When a family services organization in New York implemented this approach, they thought that their transition might take a few weeks. Twelve years later, they changed the weekly meeting of the committee managing the transition to monthly. The organization still serves families and children, but it’s just not the same organization. It operates in a much different way.

Only when organizations start on this journey with minds and hearts wide open will they be able to see and chart a clear path to use this science, and the trauma-informed policies and practices in a way that works best for them and their clients. Until then, they’ll just be trying to fit this amazing knowledge of PACEs science and trauma-informed care into the same old traditional framework.

This is the first of two parts. Here is Part Two.

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Would exploring the rationale the World Health Organization used in its 40+ question 'ACE' Screening tool (the "WHO ACE International Questionnaire") that WHO used in its assessment of the World's healthiest children (the USA ranked only 25th in that 'study'); considering that the USA is NOT one of the 194 'Signatory Nations' of the United Nations Convention on Children Rights, last I'd heard ? ? ?

Thank you, Jane, for your wisdom. I have a question - what is the best tool to use to assess organizational ACEs? Does a survey exist that includes household, community, and climate ACEs - that is validated and reliable?

And for PCEs - is it Bethell's assessment that is most consistently used?

Hi, Rebecca! Thanks for reading this and your kind words. Next week, I'll do a post about the PACEs Connection Milestones Tracker. That should answer your questions, but if you have more don't hesitate to ask me.

Forgot to answer your last question: Yes, Bethell's survey is the most consistently used, as far as I know.

Last edited by Jane Stevens

Thank you, Jane, for your wisdom. I have a question - what is the best tool to use to assess organizational ACEs? Does a survey exist that includes household, community, and climate ACEs - that is validated and reliable?

And for PCEs - is it Bethell's assessment that is most consistently used?

“It is no measure of health to be well adjusted to a profoundly sick society.”
J. Krishnamurti

AND

“Governments want efficient technicians, not human beings, because human beings become dangerous to governments – and to organized religions as well. That is why governments and religious organizations seek to control education.”
― J. Krishnamurti, Education and the Significance of Life

This blog post points to the reality that our culture is profoundly sick and has far more incentive to keep it sick and more corrupt. When the owners of our culture have a motto of Order Out of Chaos then chaos is to be expected. Our history of war is one example. But the war on "consciousness" goes way back even before the several inquisitions that lasted 300 years. We have inherited this war on consciousness in modern time with the war on crime, the war on poverty, the war on drugs and the war on terrorism. Nothing is more chaos than early trauma and stress. To be clear trauma is pain and we call it trauma. Stress is fear of past current or future pain. Pain and Fear have a lot less chaos than Trauma and Stress.  ( war on words ) The end of pain and the return of life loving life, has a lot less chaos than adversity and resilience. ( again with the war on words )

I agree that the " them and us" or "I am healthy; You are not,"mentality needs to be addressed in a much more visceral, experiential way.  How we get wounded and how we heal needs to be known from a practical repeatable first hand process. It is not enough to look at a sheet of paper that says this person has 6 ACEs, knowing you have 8 ACEs. ( Now what do I do? ) Wounding happens from the outside ( our skin ) in as events. Healing happens from the inside, out as editing the events. And it so happens that a culture is formed from the inside of the people, in that culture. If the majority of the people have pain and denial of traumatic pain then the cult will be based on the denial of pain and the fear of more or remembrance of past pain. ( thus patterns that are denied and unfelt are repeated and amplified by that culture) Thus institutionalized and generational denial of pain is at the core of the formation of society.

Much respect for all you do Jane Stevens.Thank you.  I am still in my healing and do feel we are all in this together and each voice counts to the collective creation of a new culture based of the end of pain and the return of life loving life again. This is what I teach. It is not quick and not that easy. I call it Language Lessons of the Heart. Fall 2022 Full Workshop.
https://www.youtube.com/playli...w4FsUo4FFrIVvyFtxpGA

I don't know if he did anything overtly, but I'm certain the knowledge made a difference to him personally.  I could see the depth of understanding seep into him. It was quite a profound moment. I got the feeling he had never revealed himself before. In my experience, healing begins the day a survivor speaks the truth out loud. Life moved on and I ended up with another primary physician after that. I did the same with her, and had a similar response. Quite moving.

You probably changed their lives! I know you changed mind, and look where it led!!!

Last edited by Jane Stevens

I don't know if he did anything overtly, but I'm certain the knowledge made a difference to him personally.  I could see the depth of understanding seep into him. It was quite a profound moment. I got the feeling he had never revealed himself before. In my experience, healing begins the day a survivor speaks the truth out loud. Life moved on and I ended up with another primary physician after that. I did the same with her, and had a similar response. Quite moving.

Fabulous information, Jane.

several years ago, I told my new Kaiser physician about the ACE study. He had never heard of it, despite the fact that the study was conducted at Kaiser.

He immediately googled it, answered the questions for himself, looked at me for a long moment, then said quietly, "I have five ACES."

I think he realized the wisdom of the old adage, "Physician, heal thyself" at that moment.

It's always Us. It's never Us versus Them.

Thanks, Connie! Great story! Do you know if he did anything with that understanding?

Fabulous information, Jane.

several years ago, I told my new Kaiser physician about the ACE study. He had never heard of it, despite the fact that the study was conducted at Kaiser.

He immediately googled it, answered the questions for himself, looked at me for a long moment, then said quietly, "I have five ACES."

I think he realized the wisdom of the old adage, "Physician, heal thyself" at that moment.

It's always Us. It's never Us versus Them.

Thank you for this very insightful article! I can't wait to share it with our system.   I appreciate the research that has led the way, and to all those who work to push this movement forward.

Thank you, Jane. These are important reflections that address part of the challenge for the PACEs movement. What you underplay is the vital importance of promoting policies that support families, reduce toxic stress and lower the likelihood of childhood adversity. Universal, high-quality childcare; making the child tax credit permanent; family leave; higher minimum wage; affordable housing… are among the many policies that can support families and reduce stress. Felitti, Anda and colleagues had it right in their original article: “Primary prevention of adverse childhood experiences … will ultimately require societal changes that improve the quality of family and household environments during childhood.” Promoting such changes should be a priority for the PACEsConnection movement.  

Thanks, Craig. I'm just getting started. There will be another post next week. A complete response requires a book, eh?

Thank you! If we look with a decolonized lens, we are all  connected. Tthe narrative can say PACES and TIP are separate, but it’s not revealing the truth.


Systemic poverty brought on by colonization’s domination and oppression leaves us with our current racialized society.
Assuming “we” know best about someone else’s life  (fill in the players in any given scenario) and we automatically have subscribed again to a colonization.

How can we apply equity not equality as we weave together PACES and TIP? And create respectful person centred agentic interactions?

I’m so grateful for this community!

I'd like to suggest another possible reason that things haven't changed as much as we might have hoped...  addressing the trauma - and/or the addictive responses... don't really get to the "heart of the matter" - the grief that results from that trauma - and which continues to be hidden, masked, numbed by the addictions. 

For me - as an Advanced Grief Recovery Method Specialist and a Public Health professional for over 40 years - here's how I look at it:   Trauma is what happens - Grief is what lingers - like two sides of the same coin.  While we've all been TIC'ed for years... very little has been supported to address the underlying grief of whatever that trauma has been - or is.  Until we address the grief - learning new tools to work through it and to prepare us for more in the future - we won't really make as big a difference long term or widespread - as we hope. 

I've mentioned it here before but again, I would encourage all who read this to check out the Grief  Recovery Method and our second program Helping Children with Loss - and to consider becoming "grief informed" as well as trauma informed.  Our certification training is well received - having been in place for nearly 40 years all around the world.  This Action-Based, Evidence-Based program is an easily accessible community based program with great results.  visit our website at www.griefrecoverymethod.com for more information, participant reviews, and a directory to find certified specialists in your own community or available online via zoom or other approved platforms.

Feel free too - to contact me for more information - lhall@griefrecoverymethod.com

Lois

Thank you, Jane. These are important reflections that address part of the challenge for the PACEs movement. What you underplay is the vital importance of promoting policies that support families, reduce toxic stress and lower the likelihood of childhood adversity. Universal, high-quality childcare; making the child tax credit permanent; family leave; higher minimum wage; affordable housing… are among the many policies that can support families and reduce stress. Felitti, Anda and colleagues had it right in their original article: “Primary prevention of adverse childhood experiences … will ultimately require societal changes that improve the quality of family and household environments during childhood.” Promoting such changes should be a priority for the PACEsConnection movement.  

Hi, Daun: You can print a hard copy by selecting File>Print in your browser. At least that works for me with Safari. Might be different for different systems.

Thanks for reading the article!

You are correct.  Thanks Jane!

Thank you Jane for the wonderful article that I totally agree and have been doing the movement in that direction. “Them and Us” or “Us and Them” paradigm need to be overcome by “We all are in this together” although it’s not a traditional healing paradigm as we raised professionalism based on the former modality. So it is such a challenge to do this counter-cultural movement but we need to follow our conviction that speaks the truth. I am so blessed by you and your leadership in this movement as we keep our PACES journey together.

Jane - Well said and well done!  We at CRI are launching a Trauma-Informed Leadership Series in an attempt to expand this movement out of the human service fields and into the general workplace.  Hopefully, all employers will see that the use of this science provides better insight into their employees and that trauma-informed practices are a pathway to better performance.  

Thanks for your leadership in this area!

Hi, Daun: You can print a hard copy by selecting File>Print in your browser. At least that works for me with Safari. Might be different for different systems.

Thanks for reading the article!

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