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California PACEs Action

Customizing ACEs Screening for High School Students in Santa Rosa, CA

 

When students show up for an appointment at the Elsie Allen Health Center, which is located on the Elsie Allen High School campus in Santa Rosa, CA, one of the first things they do is take an ACE survey. Instead of answering the 10-question survey developed for the CDC-Kaiser Permanente Adverse Childhood Experiences Study (ACE Study), they respond to 16 questions.

That’s because the questionnaire was designed by the clinic staff to address the kinds of experiences – such as homelessness and pregnancy – that are common in their students.

Seventy percent of the students at Elsie Allen High School are Latino, and most of their parents work in low-income jobs. Most of the school’s 1,100 students are covered by insurance and Medical, and there is a sliding scale for older teens. The clinic is part of Santa Rosa Community Health Centers.

Erin Moilanen, a family nurse practitioner, is one of the core staff, which also includes two therapists, a pediatrician, and a physician assistant. The ACEs screening started a year and a half ago when Kaiser Permanente Northern California Region awarded the clinic a $50,000 grant to do trauma-informed care.

“We started with a six-question questionnaire called the Childhood Traumatic Events Scale, but we realized it didn’t cover a lot of traumatic experiences, and it didn’t ask specific questions. The kids are very concrete, and some didn’t even understand what trauma meant,” says Moilanen.

The result was that in the second year of the program – which was funded again with $50,000 from Kaiser – the staff modified the questionnaire to include 16 questions relevant to the experiences of the students they had seen the first year. (See attached questionnaire.) The extra questions were added by the therapists and providers based on what they heard the kids report over and over again.

Moilanen says that 20 students per day come into the clinic, but typically only between one and 3 of the students are new. They are screened on their first appointment, and then yearly. A therapist explains the ACEs form to them and why it is important: “Difficult things that happen to us can affect our choices and our health in the future.”

The kids get it, she says. Responses include “a lot of head nodding in agreement, looks of dawning understanding, and some ‘yeahs.’”

Explaining ACEs to the students, Moilanen offers her approach. “So I say something like, ‘We, the medical community, now know that when difficult things happen to us when we’re young, it can actually affect our health in the future, so we’re trying to ask kids when they’re younger to try to prevent some of the bad things from happening and help them have healthier lives.”

She adds, “I feel that the kids answer honestly. We all like to talk about ourselves, and a lot of these kids don’t have people who are listening to them,” she says. The ACEs screen has had greater impact on her work than any other screening done in the clinic used in the past, such as screens for STDs or dental health, she says, because it helps develop better relationships with the students.

Last year, only 200 students were screened because of construction issues that kept the clinic closed for a few months. This year, Moilanen says, they’ve had far more new patients since they were open during the summer. They have neither the time nor the money to analyze the screening data, which they have turned over to Kaiser.

As a result of the ACEs screening, however, the entire staff is “a bit more understanding about some of the behaviors of the kids. And I think we encourage counseling a lot more than we ever did before,” says Moilanen. The staff has also done their own ACE scores and talked about handling vicarious trauma. Information for staff counseling is posted throughout the clinic as a result.

“There’s a different level of honesty and connection with the kids,” adds Moilanen, who trained, along with the other grantee staff, at Kaiser workshops on trauma-informed care. “It feels like it’s going to make a bigger impact. Thinking back to my own experiences as a teen, it’s far more important to talk about these experiences earlier and prevent negative results from happening in the future.”

The clinic is just starting to get the school itself involved by getting permission to speak to the teachers about ACEs. Additionally, the clinic is turning a large room into a lounge area for the 100 or so students who visit the clinic each day so they’ll have a place to talk, get a free condom, cough drop (because teachers are nervous about whooping cough scares when children cough) or piece of fruit, and to share their experiences.

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Hi Todd, 
This is a bit complex to answer - but I will do my best!  Here goes ... Since this post was written the work at Elsie Allen and Roseland Pediatrics has continued to evolve and now includes all of the Santa Rosa Community Health Center sites (most are based on a Family Medicine model) see minutes below for further details.  

Click this link for more detailed  Minutes from Sonoma County ACEs Connection Meeting  From the document:  Meredith Kieschinck MD shared the initial data revealed by screening patients and families at Santa Rosa Community Health Center sites: Elsie Allen High School Teen Clinic and Roseland Pediatrics.  Meredith will be sharing results of the new efforts to “Ask Everyone” throughout the Santa Rosa Community Health Center (SRCHC) system serves 50,000 local residents – 10% of the total population of Sonoma County!  Their hope is to inspire trauma-informed patient practices at each clinical site – PEDS, Family Medicine, Teen Health Clinic – etc!            


As mentioned above, both Elsie Allen and Roseland Pediatrics operate under the umbrella organization: Santa Rosa Community Health Centers which also support a Family Medicine Residency Program Santa Rosa Family Medicine Residency. These factors are also an influence. Over time they've received technical and fiscal support from Johns Hopkins and HRSA. So this is a comprehensive effort - that includes training staff, building  capacity to serve families, parent advisory committees, recognition of the impact of immigration policy on the health of local residents. 

Interestingly, they also participated in the 2016 Community Needs Assessment lead by Kaiser which identified early(SIC)  childhood development (ACEs) as the primary priority area.  Attached is the full report. 
Here is an excerpt: Early Childhood Development: Child development includes the rapid emotional, social, and mental growth that occurs during gestation and early years of life. Adversities experienced in early life threaten appropriate development, and may include exposure to poverty; abuse or violence in the home; limited access to appropriate learning materials and a safe, responsive environment in which to learn; or parental stress due to depression or inadequate social support.1
Exposure to early adversity is pervasive in Sonoma County. Among adults in Sonoma and Napa County (combined for stability), 22.0% report having experienced four or more unique early childhood experiences (ACEs) before age 18 which may including childhood abuse (emotional, physical, and sexual), neglect (emotional and physical), witnessing domestic violence, parental marital discord, and living with substance abusing, mentally ill, or criminal household members.2 Key themes among residents and stakeholders included the high cost of living and high cost of child care in Sonoma County, as well as the importance of quality early education and home stability on development among young children.  

Background on the Community Needs AssessmentThe 2016 Community Health Needs Assessment (CHNA) offers a comprehensive community health profile that encompasses the conditions that impact health in our county. Conducting a triennial Community Health Needs Assessment (CHNA) is a requirement for not-for-profit hospitals as part of the Patient Protection and Affordable Care Act (ACA). Guided by the understanding that health encompasses more than disease or illness, the 2016 CHNA process continues to utilize a comprehensive framework for understanding health that looks at ways a variety of social, environmental, and economic factors—also referred to as “social determinants” —impact health.

I hope this is helpful! 

Karen  

Attachments

I'm curious - what analysis is Kaiser doing for you with this data, and how do you plan on using the analyzed data when you get it back? Another question, did you have to get permission from the parents or guardians for the kiddos to participate in the survey?

I echo Mr. Gallant's concerns. Having worked closely with Dr. Anda (Co-Principal Investigator and designer of the original ACE Study) over the last several years relative to our work in Montana, I have heard him say frequently that the ACE Survey is not a screening tool. I realize that it is being used that way across the nation, but I think it's worth addressing that very relevant issue in his opinion. Dr. Anda has repeatedly stated that rather than an individual screening tool, it is a public health risk assessment. Lastly, it is my personal opinion that the ACE Survey (or anything that is derivative of it or expanded from it) should only be used with a Resilience Survey so there is a balance of what's happened to you in life - both negative and positive.

I am grateful for the work of people like those at Elsie Allen High School that are working hard to elevate the well-being and futures of our nation's children, youth, families, and communities.

My concern is the continued fidelity to Dr. Felitti's original ACE Study findings as we continue to define and address adversity, toxic stress, and ultimately the prevention of suicidal behavior in America.

In this article you said (See attached questionnaire) and it doesn't appear to have loaded onto this page. Please re-post with the attachments.

You also said, "the questionnaire was designed by clinic staff" and "Instead of the 10 question...(ACE Study), they responded to 16 questions."

My questions are,

  1. Did the appropriate folks at Kaiser Permanente participate in the design of this 16 item ACEs Questionnaire? 
  2. Does this 16 item ACEs Questionnaire clearly and intentionally address all 10 categories identified in Dr. Felitti's original ACE Study (1998)?
  3. Does the Elsie Allen Health Center or Kaiser Permanente currently identify and protect all "specific court ordered standards of care" (Personal Protection Orders, Child Custody/Parenting Time Orders) that are directly related to a person's identified ACEs [such as] Domestic Violence, Abuse, Neglect, or Divorce/Separation from a Biological Parent?

The next logical question for any ACEs Assessment/Survey/Questionnaire (to help protect them from re-traumatization) should be,

  • "Does this individual have (or have a need for) specific court ordered legal rights concerning any of their identified ACEs?" 

In my opinion, the system of care in America could and should start linking people directly to the Family Court/Child Protection Systems concerning family oriented legal and human rights violations.

This would be extremely helpful as we try to specifically address the identified traumatic experiences (ACEs), as we try to eliminate ongoing sources of toxic stress, and as we try to restore some "hope for a better future" in people served.

James Gallant, Marquette County (MI) Suicide Prevention Coalition (906) 360-3045

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