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“Treat Me Like a Person”: What We’ve Heard So Far from Californians with Low Incomes [chcf.org]

 

By Carlina Hansen, California Health Care Foundation, August 16, 2019

Over the last few months, I’ve had the privilege of listening to more than 100 low-income Californians talk about their experiences and aspirations in the health care system. One takeaway from those conversations rises above everything else I heard: They want to be treated as whole people, not as symptoms, visits, or poor people.

The focus groups and interviews we’ve been conducting in recent months were part of a CHCF-funded research project launched last spring to better understand the health care experiences and priorities of Californians with low incomes. (You can read this Q&A from our CHCF blog for more background on the project.) Focus groups are panels with diverse participants led by a professional moderator who facilitates conversations that provide insights into individuals’ experiences and attitudes on a given topic.

CHCF isn’t the first to explore how people experience health care in California, but there are important ways we wanted to dive deeper. Some of the existing data about care experiences and priorities are not available, not segmented by poverty level or insurance status, or are examined using only qualitative or quantitative analysis. This listening project is a powerful complement to existing research because it weaves together qualitative and quantitative work to tell a story about people’s experience of care, with a focus on those who have low incomes.

[Please click here to read more.]

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When I was 15, I had a serious asthma attack after a bout with the flu, and my mother took me to the hospital. When I arrived at the hospital, the receptionist asked how we were going to pay, and my mom handed her the Medi-Cal card. We were on welfare. The receptionist sneered at me and said, "Oh, you're Medi-Cal, well, you'll have to wait for your doctor.” I was visibly cyanotic—I had already turned completely blue for lack of oxygen.  I sat nearly dying in the waiting room of the Emergency Department with my mom and aunt, who were both hysterical waiting for my doctor to arrive. When my doctor arrived, his eyes widened in fear as he saw my condition.  He immediately administered life-saving epinephrine to my vein to save my life.

I couldn’t understand how any adult--and particularly one working in a hospital--could look at me, a dying child, and dismiss me because I was poor.  I am now 60 and still cannot understand such dismissal of humanity.  And sadly, this kind of treatment of the poor is probably still prevalent in our society.  It certainly seems to be a message that we receive from our president and his cabinet.

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